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Welcome to the Rare Cancer Genetics Registry (RCGR). The mission of the RCGR is to create a registry of participants with rare cancers who are available to participate in research studies, and an accompanying DNA bank for genetics research. The RCGR, which is funded by the National Institutes of Health, is a resource for recruitment, planning, and coordination of studies on rare cancers. The RCGR is currently recruiting participants with these rare cancers:

  • Sarcoma
  • Myeloma
  • Head/neck cancer
  • Renal cancer
  • Esophageal cancer
  • Gastric cancer
  • Pancreatic cancer
  • Testicular cancer
  • Fallopian tube cancer

The RCGR is a resource for patients providing a link to current information and research. Please use the PARTICIPANTS link to the left to acces information on the current studies, answers to Frequently Asked Questions, and links to associated websites.

The RCGR is also a resource for investigators and provides the following:

  • Centralized DNA bank
  • Ability to re-contact registrants for new studies
  • Database with registrants’ family cancer history, risk factors, and genetic test results
  • Centralized repository of registrants’ pathology records
  • Ability to obtain registrants’ tumor tissue